My friend Beka has been sick for many many months. She has been going for testing and the Doctors cannot find a reason as yet to what is causing her issues. We are concerned that there is a hidden disease that is being masked by smaller aliments that are a symptom rather than the cause itself. If anyone has experienced the following issues or know of anything to test for please let us know. We’ve tried www.webmd.com and other such sites but we can’t point to the origin yet so we don’t know what to search under. Here’s a time-line.
Oct. 2010 (7 months ago)
First symptoms:
-Developed Singles, given antibiotics (acyclovir and ciproflaxen) which cause C-Diff. Have had intermittent rectal bleeding since.
Feb 2011 (3 months ago)
-developed Pneumonia, was given the antibiotic Z-Pak.
All during this time line she had experienced abdominal cramps (bad cramps), frequent vomiting, night sweats, general weakness, anemia, dizziness. She has also experiences around 3 times, both hands suddenly turning smurf blue for several minutes and then returning to normal.
She was referred to a gastroenterologist in feb, and the doctor has ordered multiple tests and here are the results
First Tests
Blood test and EGD, stool:
Results were severely elevated ALTS and LFTS, and the EGD found erosion of the esophagus, a hiatal hernia [moderate]. And stomach was very inflamed- Doctor took a biopsy of the stomach. Confirmed H.Pylori.
Was Prescribed amoxicillin and vancymyocene(?). Initial blood test did not show the infection from H. Pylori and neither did a stool test.
Start of March
Colonoscopy, blood:
ALTS and LFTS were still elevated
Colonoscopy showed internal hemorrhoids (small).
April
Sigmoidoscopy
Hemorrhoids are now moderate (increased in less than 2 weeks), Hiatal Hernia increased in size as well to just under sever.
Hydascan-
gallbladder was functioning at a slow but normal rate (40% were 35% is considered normal)
Between the Colonoscopy and the Sigmoidoscopy (2 week time frame) she lost 8 pounds, and when the hemorrhoids and hernia increased in size as well.
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Patient History
Beka is Rh(neg) and has had 3 children. She has also has bacterial Pneumonia that has left her lungs with scarring but has not affected her life style, weighs 125 currently, is 33 yo, and does not smoke or drink. deadly allergic to bees. She was diagnosed with ovarian cysts in early 2010 when one ruptured while she was at work and had to be taken to the hospital. Her urine is really dark (almost orange) all the time.
Family History-
father died of leukemia before she was born.
Grandfather on maternal side- died of prostate cancer.
Paternal Grandfather died of throat cancer.
Maternal Uncle currently has colon cancer
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Beka’s sister in law is an OBGYN, her Doctors, and all of us think there is some underlying disease or issue that caused the Shingles to appear. She is scheduled for an upcoming Liver Biopsy and MRCP.
Right now her Doctors are at a loss and the bloods tests are not pointing to anything. They are concerned about moving to fast with her, but me and her sister in law think they need to get more aggressive. They have ruled out hepatitis.
If anyone has known anyone with similar experiences or know of other diagnostic testing that might pinpoint an issue please reply! The Doctors just aren’t finding anything and I’m afraid where we’re in a small rural community that they might be missing something that is not common here or isn’t seen as much due to small populations! We’ve checked the Liver, gallbladder, colon, small bowel, stomach, esophagus and haven’t found anything!
I am also concerned about the validity of the results of these tests since the H.Pylori was only found due to the stomach biopsy, if some infection or something could be hidden and the blood, stool tests just missing them completely.
Not to borrow trouble but if it is something serious we want to find out now and fight it before it becomes life threatening. Any help is greatly appreciated. If anyone needs more info please just ask.
thank you for the response what do you mean it is not standard i was given 2 different antiobiotics to take for 10 days and have to go have a breath test done to confirm if the h plori is gone and i believe the other prescribtion was clarithmicin… i still have the nausea and the abdominal cramps, my liver is still highly elevated .. again i am not a doctor but i do not seem to be finding the answers …. and what is crohns ? by the way this is beka speaking